Tag Archives: Cancer

The Musical Chairs of Cancer

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Set-up for musical chairs

Do you remember the childhood party game Musical Chairs? I used to love going to birthday parties and playing that. When the music started, you would walk around the circle casually, sometimes touching the chairs, just listening to the music playing a happy tune until some unseen hand took the needle off the record (Yes, we played that game with vinyl albums!) As the music suddenly halted,  you lunged into the nearest available chair-hoping not to be the extra child without a seat. If you were unfortunate enough to be the last one standing, you were out of the game.

I compare my current situation to that childhood game. I go along living my life, teaching classes, walking, going to church, watching movies, listening to music, and then suddenly, it’s time for a PET scan.  There is a breath holding few days where we wait for the results…Will I still be doing the daily drive to work (#hitraffic), watching Chopped on the Food Network, hiking the Aiea Loop trail, and generally being “normal” OR will I be thrown back into the grind of surgery, weekly chemotherapy, blood testing, and hospital visits. Each scan, I wait for the music to stop, and then determine if I am with or without a chair.

Last year on Valentine’s Day (incredibly bad timing), I received that call that my cancer had returned. Since March 14th, I have earned frequent flyer points at Tripler Army Medical Center. The current status is a monthly (which really means every three weeks) maintenance plan of Avastin and careful monitoring of my CA 125 levels to continue indefinitely (like in forever).  Side effects of all of this include some pretty unkind migraine headaches and fatigue, but this is small “kine” stuff compared to the radiation and frontline chemotherapy.

View from the Oceanside of Tripler Army Medical Center
View from the Oceanside of Tripler Army Medical Center

In the meantime, I am listening to the music and focusing on my One Word for 2015! That word is Strength.  Rather than making a series of New Year’s Resolutions about working out, eating less, and reading more, I am choosing to focus on a single word-focusing all my efforts towards building strength…in my body, in my mind, in my faith, and in my relationships. My plan for 2015 is not a single day event, but hopefully a series of activities that will make me stronger. Physically, I feel better now than I have felt since January of last year. I plan to run (haha-just kidding) walk in the Great Aloha Run in February. Am I ready? Absolutely not. But, the training process has begun.

Great Aloha Run Hawaii
Great Aloha Run Hawaii

I believe I’ll still have a chair in the game come next week! You are not behind. Start now. What is your One Word for 2015?

Trying to get up that great big hill!

Koko Head Crater

At one time, not too long ago, I was actually able to walk up Koko Head Crater-it was challenging, yet not impossible. The popular Oahu hike was approximately 1 mile…straight up…1048 stairs/railroad ties up the side of a enormous cinder cone.  The view from the top was spectacularly breathtaking. These days, I think I could only walk from the parking lot to the trail head. However, even when I was able to successfully complete the hike, there were a few other folks that passed me like I was standing still.  On the way down, still others were barely making it up.  My challenge was a cake-walk for some and an impossible dream for others. Food for thought as I refocus my efforts toward getting healthy.

Now, I’m trying to get up the hill of recovery! What’s the plan? It’s a work in progress, a multi-pronged work in progress. Exercise-check. Ableit, in a much smaller fashion than BC (before cancer). My immediate goal is to walk up the hill in the neighborhood (all the way to the top). Healthy eating-check. Thanksgiving is right around the corner, but for now, it’s plenty of veggies/protein and bags of spinach (they say it’s washed, but I am suspicious, therefore  doing that hard salad spinning myself). I am re-acquainting myself with plain Greek yogurt and a sprinkle of Grape Nuts and fruit on top. It’s not as terrible as it sounds…really. Reading-check. On order from Amazon:

Small Victories-Spotting Improbably Moments of Grace by Anne Lamott
Small Victories-Spotting Improbably Moments of Grace by Anne Lamott

This Thursday marks my second maintenance treatment along with a Doc appointment on Monday. I haven’t been to Tripler Army Medical Center in three whole weeks (3.3 weeks).  I am focused on getting myself sussed each day and up by 5:17 am and back into bed by 9:36 pm (this has something vaguely to do with sleep cycles and a sleep calculator).  Still a long way to go, but the view on the way back up again is pretty rewarding. Plus, I am enjoying the lack of vomitting more than you can possibly imagine.

In a reflective mood? Maybe a little, but I’m looking backward and forward simultaneously. Musically, maybe some 4 Non Blondes will help you start your day with What’s Up?

Don’t forget to check out the sunsets on the way!

Sunset on the North Shore of Oahu
Sunset on the North Shore of Oahu

Maintaining (Cancer Free)!

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Maintaining the diet!

You go on a diet…you lose that elusive 10 to 15 pounds 20 pounds,more? You counted “points” ate Gluten free, ate low carb, ate Paleo and now you are a newly transformed person with ultimate will-power, making excellent choices in all your eating and  exercising 3-5 days a week at 70 percent of your heart capacity.  (That’s the dream of all dieters, right?) Then what? The hard work of maintenance dieting begins. The process of keeping all the work you’ve done, frozen in time, is the goal of both maintaining your weight and maintaining the results of  cancer treatments.  The rush of eliminating the unwanted pounds is gone, compliments on your dedication tapers, and friends just expect that you’ll keep that weight off and continue your journey successfully. You hope that you won’t backslide like so many dieters do and become just another statistic.

Happy Valentine's Day
Happy Valentine’s Day

On Valentine’s Day, 2014, my doctor called to say those dreaded words, “I’m worried” about your CA (the cancer marker found in blood) levels. Shortly thereafter followed surgery, radiation, and 5 months of chemotherapy. Now, we maintain the results with an  every-three-week it was “sold” to me as “monthly” treatment of Avastin. Avastin is a fancy expensive drug that has been part of my regimen since May 22nd. Essentially it is an infusion that keeps the cancer cells starved of blood so that they don’t develop into tumors. Side effects for me are primarily headaches, which I am learning how to fend off more effectively. Why didn’t I get the ‘loss-of-appetite” side effect?

Avastin
Avastin

How long do you have to keep your maintenance diet going?  Weight loss professionals say that maintenance should really become a lifestyle change and it should go on indefinitely What, no more sugar forever? I don’t think so.  My doctor called last week and started talking about how my maintenance treatments will continue for a year….wait for it….or forever. Forever? Seriously, Forever. Evidently doctors aren’t unanimous  in exactly how long this treatment should be continued or how long it will stay effective.

So that’s where we are. In the dreaded “maintaining” portion of our cancer diet Time to focus on the basics of good nutrition except for cupcakes,  getting the energy to walk up the hills in my neighborhood, and sleeping for more than 5 hours uninterrupted (maybe that part won’t ever happen). I’m actually happy to have the opportunity to normalize my life and not think about life and death on a daily basis. Time to kick back and enjoy the maintaining!

How do you maintain the positive changes in your life-whether diet or exercise or something else? Is a struggle or a piece of cake? I’m Curious.

 

Done not done

Do the words “on the edge” connote something good or bad? I am hopeful as I take my first steps into unknown territory that is the start of something amazing.  Today will mark (assuming all my blood work is in order) the last of the frontline chemo. If anyone was counting (me), there have been 28 treatments in total (16 in 2012 and 12 in 2014). Twenty eight infusions of chemicals into my bloodstream and 28 mini-battles to get myself back together again. But now… NO MORE Carboplatin and Gemzar….only Avastin.  As Ross says, “I’m no mathematician,” (he is) but that is a 66.7% reduction in drugs. That is definitely worth a celebration!

Stepping out over the void
Stepping out over the void

 

The good news is that the weekly grind of treatments will disappear, but in its stead, is an extended regimen (while not as physically debilitating) which will extend for a full year. Done, but not done. The last time I did this, done was done, until it came back. This time, we are hoping that the Avastin will keep any new tumors from developing and growing.  This monthly every three week therapy is one of the hot new cancer treatments that they are using on me. The word on the street  The nurses are telling me that it will be much easier to bounce back from these infusions.

Celebrating the New Year!
Celebrating the New Year!

Even though 2015 is around the corner, this is my own personal New Year’s Celebration! The “journey” isn’t over by any means, but hopefully, it won’t be as rigorous. I am excited to begin exercising without catching my breath, drinking a glass of wine without getting a headache or vomitting, and spending more time with friends/family instead of crashed on the couch.

The next hold-your-breath moment will be at the end of this month. Doctor has ordered a PET scan to make sure that done means done.

 

Get out of the Car

Wet, muddy, and humid. Not-so-perfect conditions for the weekly cross country meet, and yet the parking lot was packed and the runners were enthusiastically warming up. I spent a good 10 minutes motivating myself to leave the climate controlled car to find the Mid-Pacific tent of runners and fans. One of my students, after asking why I was wearing white shorts, thanked me for coming out to see the meet. (I have no excuse for white shorts in rain and mud-none.)

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Kaiser High School Cross Country Meet

Before 8 am, most of the runners were soaked and muddy and the races hadn’t even started yet. I was surprised how cheerful and full of laughter they were. I told my son afterwards that I always love talking to Student X because she laughs at all my jokes. His response: “Yeah, she laughs at a lot of things that aren’t funny.”

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Runners from Hawaii Mud Run

The meet today comes on the muddy heels of a really junk week.  I realized that I have thrown up more in the last 4 months than I have in my entire life. On Tuesday, I spent most of the day in the hospital getting IV fluids, Potassium, and Phenergen, trying to get my system back in balance from the previous chemo. I rallied for Wednesday and was back in the classroom again. I wasn’t actively vomiting, so I figured I should be at work. It is not just a duty concept that brings me back to school every day.  Today’s events really captured it for me. Despite their  own “Struggle Bus” of conditions, kids just get out of the car and get going. No one complained, they just did. That is what energizes me!

Even though I see them in the classroom every day, it was fun to see them overcoming the elements and enjoying each other’s company.

Physics
Physics Test Bank

 Monday, it’s back to Physics!

No Evidence of Disease (#NED)

The words that every cancer patient wants to hear-No Evidence of Disease! I was sitting on the exam room table when the nurse came in with the report and flopped it open for me to see. At first, I had no idea what I was seeing, but then, the words jumped off the page-NED!

Radiologist's Report
Radiologist’s Report

A special girl, Morgan, brightened my day with a bouquet of Star Lillies. And yes, I want to keep “filing batter” for a long time.

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“Congrats on your filing batter”-Love Morgan

What’s next for me? Three more chemos to knock out any remaining or developing cancer cells. Then, monthly (and by “monthly” they actually mean every three weeks) chemo for a year. I still have a long haul ahead of me. Blood pressure is too high (from chemo, of course) and platelets keep dipping (from chemo, of course), WBC (White Blood Count) is all over the place, and RBC (Red Blood Count) is dipping into transfusion land.

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Tripler’s Chemo Room

BUT, I am blessed! I feel lucky every day I get into work and am able to do my job and see those students. I’ve been through the ringer-surgery, radiation, chemotherapy, but because of friends like you, my battery is recharged. I can officially say I am a two time cancer survivor!

NED-No Evidence of Disease Movie poster
NED-No Evidence of Disease Movie poster

Pet scan time-“Eyes to Thighs”

So you want a Pet?

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Leilani Kitty-Our Pet

No, not that kind…this kind…a Positron Emission Tomography (PET) Scan.

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Areas of hyper-metabolic activity light up!

Tomorrow is my six month scan. We are hoping not to see any areas light up this time!  Today (Thursday) is the prep day. Starving the body of sugar and focusing on low carb eating.

A day of eating this…

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Genoa Salame and Provolone Cheese-$4.99 at Safeway

And this…

 

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Salted Peanuts

Tomorrow (Friday) is just watery water…Nothing else!

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Watery water

Then, they inject the radioactive tracer…and allow it to circulate in the bloodstream.

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Injection of radioactive tracer element

One hour of sitting “Quietly”…no music, books, talking, moving, etc. They really mean it when they say sit quietly. After 1 hour, the dye has had a chance to circulate through the whole body (organs and tissue) and you’re ready for the scan to begin. Any areas of hypermetabolic  hungry cancer cells, will be activated and light up during the scan.

Then, the tube. It like a crystal ball to look at your innards.

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Pet Scan machine

And then waiting…for results…till Monday-an exercise in patience impatience. What makes you impatient? How do you cope?

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Seeing the doctor Monday after school.

Building a tower!

This week marked two weeks of school and crossing over the halfway point in chemo. It reminded me of building straw towers in physics class.  Students started out the week with 50 straws and 2 meters of tape and were tasked with building a tower that could support a golf ball on the top. The best towers had a strong base and a lot of support. Some towers never made it off the ground: they were flimsy and poorly thought out. The winning towers were the ones in which the builders created alternate plans when encountering disappointment.

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Straw Tower to support a golf ball.

 

I want to model my school year on those successful towers and teams. Each week my actions need to mimic the successful characteristics of the soaring towers! It needs to be carefully planned with lots of support, and a fallback plan if things don’t go the way I intend.  Last weekend, I think my tower went too high. I pushed myself a little too hard and paid the price over the weekend with a brutal headache and record breaking vomitting. I was reminded of Buster’s quote from Arrested Development, “Yes, I was flying. But a little too close to sun.”

This week I had Back-to-School night on Thursday followed by chemo on Friday. Week two has been better because I know the students now and everyone is getting back into the mechanism that is school. My son’s Cross Country coach says it takes two weeks of training before the initial pain subsides. Well, I have completed two weeks of training, and I am optimistic that Monday will be my best day yet! My lesson plans are ready and alternate routes are planned as well.

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Fortunately by Remy Charlip

 

 

 

 

 

 

 

 

 

 

The test of my chemo/work schedule will be this weekend as I deal with the side effects of Carboplatin/Gemzar/Avastin. Fortunately, we had a great meal delivered by some friends at church and I had a delicious nap this afternoon. So that helped mitigate the lengthy chemo process.

One of my favorite books growing up as a child was Fortunately by Remy Charlip. For every bad thing that happened to Ned (the main character), there was an equal and opposite good thing (Newton’s 3rd Law!).  “Fortunately, Ned was invited to a surprise party. Unfortunately, the party was a thousand miles away. Fortunately, a friend loaned Ned an airplane. Unfortunately, the motor exploded….etc.”

Fortunately for me, I have some wonderful family and friends and coworkers, so I am expecting great results from this year!  What’s your favorite childhood book that still speaks to you and motivates you?

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Ned, being chased by a tiger…Fortunately, he can dig!

Won’t you take me back to school-patient/teacher

Won’t you take me back to school…I need to learn the Golden Rule.  This song was rolling through my head this morning as I drove to school. Remember the Moody Blues?  It feels good to be back to work and teaching once again. Students rolled in on Tuesday, and their energy motivated me as it always does.

Mid-Pacific

Fall Summer is in the air at Mid-Pacific! After a week of preparation, the real work began on Tuesday. In addition to making sure students are ready for college, I have the added challenge of Friday chemos.

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Kawaihao at Mid-Pacific

The students are like a shot of adrenaline to the system! One of the things that I love about students is that you always know exactly how they feel about things. There is no holding back!

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Student tables at Watase Courtyrad

After a week of school, I am exhausted but happy. I went to bed before 9 o’clock every night and up by 515 each morning. Add the 45 minute commute both ways, and it is a challenge, even for a healthy person. I know that next Friday will be the real test of my mettle. Mega chemo (Carboplatin, Gemzar, and Avastin) followed by a all-too-short weekend and then back to school on Monday.

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Today after reviewing Scientific Notation with my students, one of the boys said, “I finally get this.” That is enough to keep bringing me back every Monday-chemo or not!

Back in the Saddle-Getting the job done

Weekly reality TV shows start each week with a recap of the past weeks’ episodes including the most dramatic moments.

Does not include the Phernegen IV

So, if you are just turning in to this show, here’s what happened in previous episodes of “Kym’s Ovarian Cancer.” After successfully beating Ovarian Cancer in 2012, I received an ominous phone call from my docctor.   My blood cancer marker had unexpectedly doubled. To be specific, it was February 14th, and I was driving on the H3 from one side of the island to the other. When the doctor told me the news and indicated that the cancer was probably back, I had to pull over to the side of the road to take that information in. That was easily the worst Valentine’s Day ever!

Screenings and pre-surgery appointments followed. My exploratory (never-sounds-good-when-you-say-it) surgery was on March 10th. The affected area this time was the peri-aortic lymph nodes. This is apparently a dicey area in which to operate because the area is filled with a tricky vascular network. Four weeks post surgery, I began a series of 25 daily radiation treatments (I think we landed on 4500 CentriGreys) concentrated in the peri-aortic lymph node area. About a week after that was finished, we started on chemo. I was labeled Platinum sensitive, so Carboplatin was chosen again, along with Gemzar and Avastin. All medication is delivered via a port that has been surgically implanted in my chest wall. Fast forward through several failed WBC’s (White Blood Count) and unfortunate vomiting parties, we made it to July 4th!  We are again playing the  low can your white count go?  Then there was the Give yourself a Shot Day (Neulasta category),  If you were producing this as a show, it would make an excellent storyline with a huge cast of characters and a dramatic plot.  Maybe Christina Applegate will play me. Who will play you?

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In this week’s episode of Kym’s Ovarian Cancer, we get a major dose of fun! The first chemo of the cycle is all of the meds to include Carboplatin, Gemzar, and Avastin.  The prelude is a nice fat bag of anti-nausea meds. Today, they’ve added an extra bag of anti-nausea meds. (Today’s total of IV bags was 7: 2 bags of hydration, 1 bag of steroids/antinausea, 1 bag Carbo, 1 bag Gemzar, 1 bag Avastin, and a bag of Phenergen.) Next Friday will be a few bits of steroids and Gemzar. After the next treatment,  I’ll be halfway though  chemo. This will be a major milestone. Despite the fact that I am not even halfway now, I am still ecstatic! Why? I am going back to work next week! I am beyond excited about seeing the students and my fellow teachers. Just to be normal again (even with these Friday blips) is one of the things I am most looking forward to (did it hurt when I ended that sentence with a preposition?) On March 7, the last day I worked before my surgery, I went outside and the beautiful Mid Pac campus and the sweet Manoa air almost made me cry (Seinfeld’s Newman once said this about Hawaii…”The air is so dewy sweet that you don’t have to lick the stamps.”)

My favorite day of school is always the first day of school. It’s like the first hole on the golf course, no mistakes and everything is awesome (Check out the Lego movie). I predict now it will be a great first day. The chemo will drag on into October, so will keep the spirits up by hanging around fun people who make me laugh.  Maintaining that energy will be the largest problem through the fall terms . Side effects from chemo can last up to 6 months, so even if you’re done, you’re not done.

SPOILER ALERT: In future episodes, Kym will go on maintenance chemo. PET scan will occur in November to see if these meds are arresting the growth of the tumors. Watch the hilarity ensue!