What a great time to get back to basics!
View from my morning walk!
What a great time to get back to basics!
View from my morning walk!
My oncologist-Dr. Dietrich-retires from United States Army today. He has been by my side for 6 years. Two times, he literally saved my life. I will be forever grateful to him for giving me more time to do the things I want to do in life. His kind manner has changed the way I see the medical profession. I am headed to his retirement ceremony now!
I wrote a poem
Dr. Dietrich-the cancer doc
helping patients with their fear and shock
his most helpful phrase-“I’m not worried”
kept me from feeling flustered and hurried
each appointment began with a little chit chat
I know I’m really going to miss that
He leave us now with his beautiful wife
off to Kentucky…for a brand new life
forever he will stay in our hearts
cancer’s got nothing when he gets to start
with every person he’s walked a few miles
always kicking it Dietrich style!
for me he’s the best..there is no second
my own super hero, my own secret weapon
thank you for all you have done
I actually think we did have some fun
This is the final port of call-for the port. Time to scuttle the metal that has traveled with me for over 5 years. It served its purpose, delivering life-saving chemo drugs (Carbo, Taxol, Gemzar, Avastin, and various blood draws. My last PET Scan showed good news…no hyper metabolic activity. (broken rib from falling/coughing? …but no cancer)
I don’t know why….but that was it.
Dr. D and I agree it was time for my little friend to go.
I was thinking about Neo in the Matrix (go to the end of the scene-worth it!):
But the doc assured me it would not be that traumatic.
Finally, it is out! I think a necklace would be a good plan! My Trophy!
Thanks to the Kym Roley Support Team (KRST) who waited in the freezing waiting room (Ross, Lesli, and Ben.) Ben and Lesli made me a little brekkie when I got back home.
In the Book Thank God It’s Monday, Roxanne Emmerich says, “I don’t care how many hours you work, how many obstacles you hit. Just show me the baby-I want to see the result.”
The Result is now! Time to focus forward!!
Each year I choose #OneWord to focus on for the following year:
What is your One Word for 2018?
Breaking up with Cancer…
(Oh wait…that is for the Astrological Cancer sign)
I’m calling it. Over….done….owarimashta…hallas…finito
Yes, it will leave a scar.
Yes, it is a minor surgery.
No, general anesthesia is not required.
When should we do it? December 22….Christmas gift!
We keep moving forward! Motivation is seeing my 84 year-old father fishing in 25 degree weather. #Neverstop
2018 will be a positive year of good health, family, and friendships!
Latest monthly blood-work shows my CA level (Cancer Antigen marker) has gone down to 6.0, the lowest it has been in over a year! I’m up for my 6 month mammogram in September (high risk for Breast Cancer).
First was the shock
Hit by a truck
We fought together, you and I
Persistence, humor, a dollop of grit
Defiant battle cries as we took the hits
Some came and fought a battle or two
Many the whole time…the one’s like you
Round two-a surprise…..I’ve often asked why
A protracted war…it made me cry
Our fight club continues in this roundabout way
We lost another sister just the other day
“How can you go-it’s just so sad?”
But being with these women actually makes me glad
They never give up
Radiant faces in various stages
Fighting the ravages-cancer’s wages
Support and prayer
An idea or two
These women in earnest
What is your fight club?
Where do you go?
Who are the people who raise your bar?
The question was…Do you call on Friday afternoon and possibly get the bad news, or wait until Monday for that same possibly bad news? Is knowledge power? Or, do you shift your paradigm and call as soon as humanly possible and hope for the best of all news? My philosophy during this entire “journey” has been “head down and power through.” I’m happy to report that my cancer number (CA125) has actually dropped from a brief uptick last month. Good-to-go until the next test in 6 weeks (which in itself creates its own form of stress)!
One of the concepts I’ve throwing around in my head is the idea that our health is not binary. We are not just a “0” for everything is perfect, or a “1” for everything is fail. You’re never “just sick” or “just well”- there is a large continuum in which we all fall.
Ellen J Langer says it much more artfully than I in the book Counter Clockwise
“Just as we like to imagine that the mind and body are separate, so we imagine that at any one point in time we are healthy or we are not, and attitude that brings unexpected consequences. When we are healthy , we imagine we don’t need to pay much attention to our health. When we are sick, we imagine that we should be able to find expert information that cures us.”
It’s tough to live in the moment…neither speculating ahead or reflecting back, but right now, that is exactly where I am. Savoring this great moment! Thank you all for your continued well wishes being sent my way!
I’m always wondering where I can find extra time in my day to do the things that make me happy! Wondering where all my time went, I recently downloaded the Life Cycle App. This app gives you the ability to quantify that question of.. where does all my time go?
My life Cycle App tells me that I spend between 1 and 1.15 hours a day commuting back and forth to work. Not actually breaking news, but this became food for thought.Specifically, what could I do with all that commuting time in #hitraffic.
Here is a typical day (the app automatically tracks your movements-no need to input data)
Here is a one month break down:
Then, my sister sent me an article suggesting that if we disconnected from social media by a bit, our productivity could increase by leaps and bounds.
According to better human’s blog post, it’s all about creating new habits!
“Getting good at habit formation took me years….One game-changing idea from a good book is worth thousands of dollars. If a coach helps you read ONE more good book a year, you already get your money’s worth.”
But wait, what if it’s an audio book, or a podcast?
I’d like to share with you some of my favorite podcasts that motivate and inspire me!
One of my favorite quotes from Robin Sharma…” Problems are servants. They help you grow and lead to better things, both within your organization and in your life. To resist them is to avoid growth and progress. Embrace and get the best from the challenges in front of you. And understand that the only people with no problems are dead.”
What do you do that motivates you? Share out in the comments section. Please share and subscribe.
FODMAP UPDATE : Day 10 of the elimination diet. Evidently apples are bad. No migraines for two weeks and no guy issues for 10 days. This might work!
Apples are bad.
Excuse me? Apples are good for you! An apple a day keeps the doctor away.
Well, not for you….along with a million other things you think are healthy.
People with trouble digesting fructose in the large intestine must several limit all FODMAPS (short chain carbohydrates). FODMAP -had you even heard of this? Plus, it’s not just the food, but the volume of food. A bite of apple, some Falafel, and buttered mashed potatoes all together…not good. I can attest to that!
That’s the story so far. Causes? Radiation side effects, scar tissue, or IBS. Those are the three they are throwing around. I guess it doesn’t matter which it is because the results is the same. Lower left quadrant pain, bloating, constipation and diarrhea…Oh My! You pick. They are all junk. I have always known certain foods bothered me, so maybe it’s been there forever. After consulting with the experts-my oncologist, the gastroenterologist, the nutritionist, my husband, my sister, my co-worker, my walking partner, my mother and mother-in-law, I have decided to move forward with this diet in hopes that my symptoms will abate.
Back to Tripler hospital…
Game day for me starts today with a colonoscopy and then the FODMAP elimination diet. One aside on the colonoscopy….it’s somehow possible to gain weight during the colon prep. I can only assume it’s from the salts in the OSMOPREP Phosphate pills. But seriously? Ridiculous. I thought evacuating the colon was good for at least 5 pounds. Someone lied to me. Have you had a colonoscopy yet? What prep did you use?
The FODMAP Elimination Phase-eat nothing….Just kidding! There is lots to eat, kind of.
Allowed: banana, rice, corn chips!, carrots, fish, beer, wine, cheddar cheese, strawberries, blueberries, zucchini, creamy peanut butter to name a few. Oh, wait…pickles and olives
Not Allowed: bread, pasta, flour tortillas, milk, broccoli, cauliflower, asparagus, beans, yogurt, onions, garlic, and more!
Two weeks on this and then the Challenge Phase…to be continued.
Tell me about your special diets!!
Still alive and kicking!
Preparing for Christmas in Hawaii is fun!
Decorate your tree and sit back and relax…..and wait for your medical appointment!
Preparing for a PET scan can be just as painless. Future you will be happy if you’ve planned ahead. Plus, if you don’t prepare properly, there is a possibility they will reschedule the scan! As usual, all my advice comes with the warning to check with your own doctor!
Let’s talk about preparing for a PET (Positron Emission Tomography) It starts 24-48 hours before the scan. The actual scan calls for injecting a radioactive tracer into your bloodstream and waiting to see where there might be areas of unusual metabolic activity (like Cancer) The PET takes place in Nuclear Imaging rather than Radiology. (I have addressed the day of PET in a previous post, but I’d like to focus on the 24 hours prior to Pet in this post.)
The PET starts 24 hours before the actual scan with a sugar free diet (as much as possible) to starve all the body’s cells of sugar. For me, it’s like the Atkins diet for Pescetarians. Cancer cells love sugar! Well….all cells need sugar!
Here is your twenty-four our hour count-down for diet and wardrobe:
T-24 Breakfast– scrambled eggs and coffee (enjoy that coffee because you don’t get it on the day-of treatment. No OJ either!)
T-21 Morning snack-hummus and veggies (no fruits–way too much sugar)
T-20 Lunch-spinach salad with the lowest sugar dressing you can find (Blue Cheese or Caesar) and hard boiled egg and cucumber.
T-16 Snacks! Lightly Salted Almonds!
T-13 No workout today-you don’t want to strain any muscles before the scan and accidentally cause a false positive. Some websites suggest not to exercise 48 hours before scan. Check with your physician.
T-11 Pack a small bag for the scan room. Usually chilly, I bring a sweater that I can wear in the scan and warm socks. No Metal anywhere though! Women, I wear a tank top under my clothes so I can wear my own clothes rather than a hospital gown. Bring something to read or your Bullet Journal for planning or a book (The Light Between Oceans by M. L. Stedman will transport you from whatever you are doing!) . I usually don’t bring an iPad. I don’t like to leave it in a locker and the hospital is not responsible for your valuables. Leave all jewelry at home!
T-10 Dinner-Salmon plus stir-fry mushrooms, zucchini, red pepper-Dessert is fresh watermelon. Did you want wine with dinner? NO-cannot-no alcohol!
T-8-Sleepy-time! Get plenty of rest the night before. No time for insomnia…(we’ll do that in another post!)
T-4 Sorry, no breakfast today. No Coffee either! Get over it! It’s for a greater good. Drink plenty of watery water this morning. You’ll want to wash that radioactive tracer out and dehydration is no fun. Wear comfortable clothing today! Today, it’s okay to wear yoga pants or leggings and a t-shirt or sweater. Steer clear of zippers and metal attachments. They cannot enter the machine and then you’re back to wearing a hospital gown.
T-2 Blood test to see if your blood sugar is in an acceptable range. This is like the lie detector test to see if you consumed too much sugar in the day prior. Safe range is 80-150 mg/dL
T-1 Injection time-the tracer will need 45 minutes to circulate through your body. Some doctors allow reading and/or listening to music, but the policy at our hospital is do nothing. I usually fall asleep in the comfy chair while waiting
Finally!-Scan time…Relax as they roll you into the tube. The tech will position you and ask if you’re claustrophobic (little late, right? I would ask your doctor for meds prior, if this is something that bothers you.) I work on meditation skills while I’m in the tube.
Then, done! Time to go out for a meal! Results are not immediately available.
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