Category Archives: Uncategorized

Health update! #ovariancancer

The question was…Do you call on Friday afternoon and possibly get the bad news, or wait until Monday for that same possibly bad news? Is knowledge power?  Or, do you shift your paradigm and call as soon as humanly possible and hope for the best of all news? My philosophy during this entire “journey” has been “head down and power through.” I’m happy to report that my cancer number (CA125) has actually dropped from a brief uptick last month. Good-to-go until the next test in 6 weeks (which in itself creates its own form of stress)!

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Is our health binary?

One of the concepts I’ve throwing around in my head is the idea that our health is not binary. We are not just a “0” for everything is perfect, or a “1” for everything is fail. You’re never “just sick” or “just well”- there is a large continuum in which we all fall.

Ellen J Langer says it much more artfully than I in the book Counter Clockwise

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“Just as we like to imagine that the mind and body are separate, so we imagine that at any one point in time we are healthy or we are not, and attitude that brings unexpected consequences. When we are healthy , we imagine we don’t need to pay much attention to our health. When we are sick, we imagine that we should be able to find expert information that cures us.”

It’s tough to live in the moment…neither speculating ahead or reflecting back, but right now, that is exactly where I am. Savoring this great moment! Thank you all for your continued well wishes being sent my way!

What would you do with 417 hours? #Productivity and #motivation

I’m always wondering where I can find extra time in my day to do the things that make me happy! Wondering where all my time went, I recently downloaded the Life Cycle App.  This app gives you the ability to quantify that question of.. where does all my time go?

My life Cycle App tells me that I spend between 1 and 1.15 hours a day commuting back and forth to work. Not actually breaking news, but this became food for thought.Specifically, what could I do with all that commuting time in #hitraffic.

Here is a typical day (the app automatically tracks your movements-no need to input data)

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Here is a one month break down:

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Then, my sister sent me an article suggesting that if we disconnected from social media by a bit, our productivity could increase by leaps and bounds. 

The Simple Truth behind reading 200 books a year

According to better human’s blog post, it’s all about creating new habits!

“Getting good at habit formation took me years….One game-changing idea from a good book is worth thousands of dollars. If a coach helps you read ONE more good book a year, you already get your money’s worth.”

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Would they be science and math books?

 

But wait, what if it’s an audio book, or a podcast?

I’d like to share with you some of my favorite podcasts that motivate and inspire me!

The Robin Sharma Mastery Sessions  

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Happier with Gretchen Rubin

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The Charlene Show 

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Arel Moodie The Art of Likability

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One of my favorite quotes from Robin Sharma…” Problems are servants. They help you grow and lead to better things, both within your organization and in your life. To resist them is to avoid growth and progress. Embrace and get the best from the challenges in front of you. And understand that the only people with no problems are dead.”

What do you do that motivates you? Share out in the comments section. Please share and subscribe. 

FODMAP UPDATE : Day 10 of the elimination diet. Evidently apples are bad. No migraines for two weeks and no guy issues for 10 days. This might work!

FODMAP Diet-Apples are bad

Apples are bad.

Excuse me? Apples are good for you! An apple a day keeps the doctor away.

     Well, not for you….along with a million other things you think are healthy.

People with trouble digesting fructose in the large intestine must several limit all FODMAPS (short chain carbohydrates). FODMAP -had you even heard of this? Plus, it’s not just the food, but the volume of food. A bite of apple, some Falafel, and buttered mashed potatoes all together…not good. I can attest to that!

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You can purchase this at Amazon

That’s the story so far. Causes? Radiation side effects, scar tissue, or IBS. Those are the three they are throwing around. I guess it doesn’t matter which it is because the results is the same. Lower left quadrant pain, bloating, constipation and diarrhea…Oh My! You pick. They are all junk. I have always known certain foods bothered me, so maybe it’s been there forever. After consulting with the experts-my oncologist, the gastroenterologist, the nutritionist, my husband, my sister, my co-worker, my walking partner, my mother and mother-in-law, I have decided to move forward with this diet in hopes that my symptoms will abate.

Back to Tripler hospital…

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Tripler stairwell…original 1920 banisters

Game day for me starts today with a colonoscopy and then the FODMAP elimination diet. One aside on the colonoscopy….it’s somehow possible to gain weight during the colon prep. I can only assume it’s from the salts in the OSMOPREP Phosphate pills. But seriously? Ridiculous. I thought evacuating the colon was good for at least 5 pounds. Someone lied to me.  Have you had a colonoscopy yet? What prep did you use?

The FODMAP Elimination Phase-eat nothing….Just kidding! There is lots to eat, kind of.

Allowed: banana, rice, corn chips!, carrots, fish, beer, wine, cheddar cheese, strawberries, blueberries, zucchini, creamy peanut butter to name a few. Oh, wait…pickles and olives

Not Allowed: bread, pasta, flour tortillas, milk, broccoli, cauliflower, asparagus, beans, yogurt, onions, garlic, and more!

Two weeks on this and then the Challenge Phase…to be continued.

Tell me about your special diets!!

Still alive and kicking!

Pet Scan Prep (24-hour Countdown) Plan your diet and wardrobe now!

Preparing for Christmas in Hawaii is fun!

Decorate your tree and sit back and relax…..and wait for your medical appointment!

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Preparing for Christmas in Hawaii

 

Preparing for a PET scan can be just as painless. Future you will be happy if you’ve planned ahead. Plus, if you don’t prepare properly, there is a possibility they will reschedule the scan! As usual, all my advice comes with the warning to check with your own doctor!

Let’s talk about preparing for a PET (Positron Emission Tomography) It starts 24-48 hours before the scan. The actual scan calls for injecting a radioactive tracer into your bloodstream and waiting to see where there might be areas of unusual metabolic activity (like Cancer) The PET takes place in Nuclear Imaging rather than Radiology. (I have addressed the day of PET in a previous post, but I’d like to focus on the 24 hours prior to Pet in this post.)

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PET machine at Tripler Army Medical Center

The PET starts 24 hours before the actual scan with a sugar free diet (as much as possible) to starve all the body’s cells of sugar. For me, it’s like the Atkins diet for PescetariansCancer cells love sugar! Well….all cells need sugar!

Here is your  twenty-four our hour count-down for diet and wardrobe:

T-24 Breakfast– scrambled eggs and coffee (enjoy that coffee because you don’t get it on the day-of treatment. No OJ either!)

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Fresh Oahu Ka Lei Eggs-Delicious!

T-21 Morning snack-hummus and veggies (no fruits–way too much sugar)

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Prepping snacks (and lunch)! Hummus and veggies 

T-20  Lunch-spinach salad with the lowest sugar dressing you can find (Blue Cheese or Caesar) and hard boiled egg and cucumber.

T-16 Snacks! Lightly Salted Almonds!

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Resealable Blue Diamond lightly Salted Almonds

 

T-13 No workout today-you don’t want to strain any muscles before the scan and accidentally cause a false positive. Some websites suggest not to exercise 48 hours before scan. Check with your physician.

T-11 Pack a small bag for the scan room. Usually chilly, I bring a sweater that I can wear in the scan and warm socks. No Metal anywhere though! Women, I wear a tank top under my clothes so I can wear my own clothes rather than a hospital gown. Bring something to read or your Bullet Journal for planning or a book (The Light Between Oceans by M. L. Stedman will transport you from whatever you are doing!) . I usually don’t bring an iPad.  I don’t like to leave it in a locker and the hospital is not responsible for your valuables. Leave all jewelry at home!

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Teal Tuesday Per Scan Wardrobe

T-10 Dinner-Salmon plus stir-fry mushrooms, zucchini, red pepper-Dessert is fresh watermelon. Did you want wine with dinner? NO-cannot-no alcohol!

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Salmon and water-melon

T-8-Sleepy-time! Get plenty of rest the night before. No time for insomnia…(we’ll do that in another post!)

T-4 Sorry, no breakfast today. No Coffee either! Get over it! It’s for a greater good. Drink plenty of watery water this morning. You’ll want to wash that radioactive tracer out and dehydration is  no fun. Wear comfortable clothing today! Today, it’s okay to wear yoga pants or leggings and a t-shirt or sweater. Steer clear of zippers and metal attachments. They cannot enter the machine and then you’re back to wearing a hospital gown.

T-2 Blood test to see if your blood sugar is in an acceptable range. This is like the lie detector test to see if you consumed too much sugar in the day prior. Safe range is 80-150 mg/dL

T-1 Injection time-the tracer will need 45 minutes to circulate through your body. Some doctors allow reading and/or listening to music, but the policy at our hospital is do nothing. I usually fall asleep in the comfy chair while waiting

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Finally!-Scan time…Relax as they roll you into the tube. The tech will position you and ask if you’re claustrophobic (little late, right? I would ask your doctor for meds prior, if this is something that bothers you.) I work on meditation skills while I’m in the tube.

Then, done! Time to go out for a meal! Results are not immediately available.

What is your favorite book to make long waits short?

Cancer treatment-Top 6 Life hacks!

….So, you or someone you care about has been diagnosed with Cancer….now what? Remember how you made all those plans on January 1 to get organized? This time, it’s real. Successful treatment means being your own best advocate. It means getting the best information and the best treatment you can possibly get. This is not the time to be a shrinking Violet,afraid to offend-you must speak up. Your survival may depend on it!
Before you do this….
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Radiation Treatment at Tripler Army Medical Center
Or this…
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Getting ready for Chemotherapy Infusion
Do This.
 1.  Buy this book….(I read it both times I was diagnosed with Stage 3 Ovarian Cancer)
Cancer: 50 essential things to do Cancer 50 Essential Things by Greg Anderson. Practical and important advice for the newly diagnosed and those recurring.
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2.  Organize!
Get your major appointments, scans, chemotherapy treatments, radiation treatments, and tests written down in one location. You may need it in a year from now or two, or three, or 10! I like a three year calendar or even a five year calendar, because I plan to be around a long time!  Miles Kimball Three Year Calendar or go big and get a five year calendar!
This is only for big ticket items…not daily symptoms or questions. Dream big! You plan to be around for a long time!
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3.  Start a bullet journal
-Keep in this your list of questions for upcoming doctors appointments (even when they pop into your head at 3 in the morning!) 
-Track side effects from chemo and medication
-Migraines? Track the onset symptoms and medications that work
-Find those motivational quotes that keep you going!
-Track exercise! (Yes, you still have to exercise.)
-Track medications!
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4. The American Red Cross gave me an accordion folder that I keep paper test results and informative literature and paper copies of articles on the forefront of cancer research. I used to print off articles and ask my doctor about them at appointments.
5.  EVERY time you see your doctor, ask for a copy of your lab results. Every single time!
6. Don’t be afraid to ask for a second opinion! Doctors expect it. This is your life!! Take ownership of your treatment. Shed that reticence to be “that” patient. Ask for information from your doctor on why he/she wants to do specific tests and what he/she hopes to learn. Your strength comes from your willingness to speak up!! This may be your only chance. This is not a polite dinner party, but it is your very existence!
7. Bring a friend or family member to your appointments with you. Your friend can take notes and ask clarifying questions. (Bring that low maintenance friend who is happy if you talk all the way to the appointment, or if you want to be silent the whole time.)
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Hanging with the kids at treatment

This month is Breast Cancer Awareness and last month was Ovarian Cancer Awareness!

Please share this valuable information with your friends and family. Someone might be waiting for this article right now!
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Now!! Spread the word!

Teal Tuesday-why I wear Teal

Before you find your Halloween costume…

Before you get out the fall decorations…

Talk about Teal!

September is Ovarian Cancer Awareness Month….

They call Ovarian Cancer the “whispering” cancer. The symptoms are quiet but persistent.

Wear your Teal on Tuesday! Open a dialog. If someone you know has persistent digestive troubles, nausea, bloating, bowel, or bladder issues, be persistent in getting them to see a doctor! Ovarian Cancer often presents as vague tummy trouble. Ask your doctor for a CA 125 test. CA 125 is the Cancer Antigen marker in your blood that indicates something may be awry.

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Teal Nails

I recently met with Nina Wu….

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Nina Wu and Kym Roley

…author at the Honolulu Star Advertiser and told her my story. One of the questions she asked was, “What instigated you to start your blog?” Honestly, the first time I battled in 2012 and won, I thought it was one and done. I thought I could walk away from cancer.

Turns out I thought wrong.

In 2014, when it came back again, I realized that I needed to share my information with others fighting the disease and anyone who wanted to understand the battle against cancer-plain and simple. I chose to share my experience so others could learn from it.

So tomorrow, wear your teal.

 

Napa 2016

Napa advice:

  1. Don’t come to Napa to lose weight.
  2. Bring your own bottle of water with you-always. Many of the wineries don’t offer even a glass of water.
  3. Leave your kids with grandma. Some wineries have a grape juice tasting, but the experience is best saved for adults.
  4. Bring your $$$. Everything is expensive. (Wine tastings ranged from $25-$40 per person for 4-5 tastes)
  5. Plan a nap in the afternoon! …Or a massage/mud bath.
  6. Warm days and chilly nights…bring a wrap
  7. Walking shoes ✔︎ (and bandaids)
  8. Great complimentary breakfast at EuroSpa in Calistoga
  9. La Fantasia is a great “breakfast” wine.
  10. Check in 24 hours in advance for your flight for a better chance of upgrade, which I didn’t get, but was generously offered by my husband! Go Ross!

How to get a French Laundry reservation….you can’t. Let it go. We chose Bouchon instead. It was phenomenal! Highly recommend the pasta with shaved truffles!

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The French Laundry
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Bouchon Bakery-After a lunch of bread vines, cheese plates, French Onion soup, and sole with brown butter sauce and of course, wine
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Bouchon-lunch and wine-bread vines-Di Costanzo

First stop after lunch…Castello Di Amorosa (This was my favorite winery) By some mistake, we were sent to the club room. Ample pours and engaging Sommelier..Maria.

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The decanting cradle was pricey, but you can get wine shipped just about anywhere.
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Choosing is hard
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This was describe as an all day drinking wine. SanGiovese 2012

Some quick shopping in Saint Helena is required.

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Bison carries St. James brand
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The red and white stripe is me!

Or more wine..

Tasting menu at SolBar for dinner…about 200 per person. Did I mention expensive?

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Robert Mondavi
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La Fantasia…breakfast never tasted better
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V. Sattui Go Big!

 

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Picnic fun at V. Sattui

Celebrating our 25th Wedding anniversary!

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Anniversary desert at SolBar-25 years!

Graduation 2016 “Sto1k6d”Mid-Pacific Institute

I was diagnosed August 6, 2012 with Stage 3C Ovarian Cancer and now almost 4 years later (3.789 years but who’s counting?)…I am watching my son graduate. Two surgeries, countless chemotherapy infusions (Carboplatin, taxol, Gemcitabine, and Avastin), and 25 radiation treatments, but our family finally made it. There are no words that can completely describe our joy…so I’ll do it with pictures.

Friday, May 27, 2016-Baccalaureate Service Central Union Church

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Baccalaureate at Central Union Church in Honolulu

May 28, 2016, the Big Day arrives-“light” showers and then sun on campus

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Mid-Pacific Institute Campus in Manoa Valley

In the words of AJR….”I’m Ready”

 

The stage is set….to hear “Benjamin Robert Roley”

 

 

 

 

 

Finally, the fun!

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Ben, Marvin, Kyler, and Christine
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Ben and Marvin…friends since 4th grade

and more friends…

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GK and Ben…friends since preschool!
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C. Roscoe has taught all three Roley kids!

And sister Rachel

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Rachel made the “Ben there done that” sign

Mom and dad…

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Ross and Kym and Ben

Traditional Lei giving Post Graduation….Grandparents…

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Grandma Joan
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Gpa Bob and Gma Shirley
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Good luck Ben!!

 

Professional vomit queen-navigating the migraines

Warning: Not for the squeamish. Step away if you have a weak constitution. Migraine sufferers will agree that migraines are no ordinary headaches. Unlike a broken arm, there is no visible indication that your pain level is through the roof. Taking regular pain relief for migraines (for me) is like putting a dropper full of gas in the car and thinking it will take you somewhere . Migraine relief is a much more complicated dance than that. A careful combination of prevention and treatment is my only solution. I should have known the stress of this week was going to trigger a headache, but I always naively believe that this time it will be different. (Remember the movie 50 First Dates? I am like the Drew Barrymore short term memory loss character.) I shouldn’t be surprised when they happen and the route they will take, but it always catches me off guard.  I choose to not think that it is stupidity, but rather optimism. Every migraine trail I take leads to the porcelain dumping ground. (I was going to add a vomit image, but that would just be cruel to all of us, so instead, I’ll add the movie poster) When the headache ends,  it is like a long journey completed.

50 First Dates
50 First Dates

I should be happy that I’ve only thrown up three times in January. One of the side effects I appear to be having from the Avastin treatment is sporadic migraine headaches. The first sign of the headache is a piercing high pitched frequency pain in the back of my head. (It feels like the frequency only dogs can hear that drives them crazy) Then the pain shuffles from back to front and back again.  I sit with an ice pack on my head and I speculate how long it will take till the vomit train begins. Today, I made it 45 minutes. Something about vomiting is cathartic (haha! Really! At least I made myself laugh) It’s like my body realigns and resets itself after that. The trick of getting the pain to go away lies in a careful distribution of Migraine meds, anti-nausea meds, and vomit.

Last time, it was after a fantastic meal of Baked Ziti (which I used to love…I’ve attached a recipe in case you still love it.) That time was the first time that I threw up through my nose. I had a noodle come out my nose. I guess there is a first for everything.

Baked Ziti
Baked Ziti

My sister was visiting us that time, and the next morning she asked if I had been coughing during the night. Yes, I “coughed” a lot that night. It really was good ziti, more so going in than going out. Sadly, I don’t see myself eating anymore Baked Ziti in my near future.

I have recently swapped out Imitrex for Maxalt in the quest to find more effective pain relief. I think the Imitrex works for me, but when it gets thrown up so soon, not as much. Maxalt can dissolve under your tongue and sneak up on the migraine before the vomiting begins (but dissolving pills under my tongue is slightly nausea inducing too). I always wonder at what point does the pain medication count. In other words…If you take a pill and throw it up 15 minutes later, has that pill been ingested into your system enough to work? Or, do you assume it hasn’t and does again.

Today’s headache infused my dreams and woke me with a jolt this morning. 

"Last night I dreamt somebody love me." Smiths lyrics
“Last night I dreamt somebody love me.” Smiths lyrics

The only direction this day can go is up.  

Won’t you take me back to school-patient/teacher

Won’t you take me back to school…I need to learn the Golden Rule.  This song was rolling through my head this morning as I drove to school. Remember the Moody Blues?  It feels good to be back to work and teaching once again. Students rolled in on Tuesday, and their energy motivated me as it always does.

Mid-Pacific

Fall Summer is in the air at Mid-Pacific! After a week of preparation, the real work began on Tuesday. In addition to making sure students are ready for college, I have the added challenge of Friday chemos.

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Kawaihao at Mid-Pacific

The students are like a shot of adrenaline to the system! One of the things that I love about students is that you always know exactly how they feel about things. There is no holding back!

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Student tables at Watase Courtyrad

After a week of school, I am exhausted but happy. I went to bed before 9 o’clock every night and up by 515 each morning. Add the 45 minute commute both ways, and it is a challenge, even for a healthy person. I know that next Friday will be the real test of my mettle. Mega chemo (Carboplatin, Gemzar, and Avastin) followed by a all-too-short weekend and then back to school on Monday.

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Today after reviewing Scientific Notation with my students, one of the boys said, “I finally get this.” That is enough to keep bringing me back every Monday-chemo or not!