Category Archives: ovarian cancer

How’d de do dat?

“How do they put the chemo in?” Fair question.  If you are only having a few chemos, the doctor will sometimes just have the oncology nurses access a vein just like a normal blood draw.  If you are having multiple chemos, it is much easier and less painful on the veins to have a PowerPort installed in your chest.  When I had chemo directly infused into a vein in the hand (the very first time before I had my port), my hand burned and they had to keep warm compresses on it while the chemo drug worked its magic. My port  is located on my right side directly beneath my collar bone, so it doesn’t interfere with the seatbelt in a car.  Inserted surgically two years ago, it can remain in the body indefinitely.  It can be used for blood draws, injecting MRI contrast dyes, or administering chemo.  Dr. D says he usually takes them out two years post chemo.  The PowerPort gives the nurses direct access to the veins.  To access the port, they punch a special needle into the port.  There is a cold spray that can be used, but I think the spray hurts as much as the needle, so I always go with no spray.  After the chemo is complete, the port is flushed with heparin and the needle is removed.  A small bandage (just like a blood draw) is put on the access point.

1.  It doesn’t affect your ability to swim or take a shower.

2.  It doesn’t set off metal detectors as airports.

3.  They undersold the pain of insertion, but it doesn’t hurt now.

4. It can be used for regular blood draws, but the needle used is a special needle.

5.  Only specially trained folks can access it.

6. It can be used within a few days of being implanted, but it will hurt few weeks.

7. On some people, you don’t notice the port, but mine pokes through the skin like an alien head.  My daily life doesn’t include a lot of bikinis, so no problem there.

8.  For people with bad veins, this is a life saver!

9.  Only one “stick” takes care of blood draw and chemotherapy infusion.

10.  There are no problems exercising with a port, so get out there!

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Get Your Burgers Here

There are a few moments in life, when you have no choice but to “live in the moment.” Vomitting being one those. I threw up 12 times last weekend, which was a world record for me.  My vomit-free streak lasted from November 16, 2013.  Like Seinfeld, I do keep track of these things.  Still not sure what caused the Linda Blair episode (which was accompanied by a migraine style headache) but I am praying it will not happen again.  I’ll get a chance to test it next Thursday when I have my next chemo.  Last Saturday seemed to be shaping up like a normal post chemo day….a little tired and a little nauseated.  I even took at short walk at 5.  At about 730 the headache came on and by midnight, I was revisiting my dinner (In other notes-I no longer like hamburger).  This weekend made me realize how fragile our bodies actually are.  One nurse said, “We are more delicate than we imagine.” I also found that neither Zofran, Reglan, or Phenergen really work once you really get sick.  Nothing does. More importantly, I found out that Nurse Jackie (my nurse Jackie) is there for me 24 hours a day as is my husband, who patted my back and made me feel slightly less horrible.  I also learned that when you throw up violently, you get a beautiful petechial rash on your face…..vaguely Howdy Doody looking.  If there is a badge to be earned with all of this, I think I earned it this weekend.  Still unsure how this weekend fits into the general side effects of chemo category, but I can guarantee you that I was completely in the moment!

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Your Results May Vary

My friend asked me what the chemo regimen was like each week, so here goes-

Wednesday: Blood work-checking for platelet and Red Blood Count.  Pack my bag for the chemo room which includes a pack of Twizzlers and a downloaded movie (nothing dark and depressing Lis).  Wednesday night, I am always a little nervous anticipating the next day’s events.  I know what it’s going to be, but I still get nervous the night before.

Thursday: Arrive at 730 so I can get one of the 11 chairs in the chemo room.  Sometimes, it’s so packed, there is very little for visitors.  Re-check of the blood work, if the numbers were not great from the day before.  First med is the steroids and the anti-emetics.  Takes about 45-hour to run that through.  I usually get a little tired during this.  Also, 2 liters of hydrating fluids get pumped through. (Today’s Movie was Shaun of the Dead)

Drug 2 is the Carboplatin.  The Dex (steroids) are to help with the nausea of this.  One of my chemo friends calls the Dex her 10 Little Indian drug since it makes her feel like she can do 10 things at once.  Carboplatin has the most nausea side effects.  Next treatment will be Carbo #7, so that means we have to start watching for allergic reactions.

Drug 3 is the Gemzar (Gemcitabine). This one goes through in 30 minutes and one of the primary side effects to this is rash and fever. I usually get a nice red face on day 2.  Combined with the steroids, I look like an Oompa Loompah on day 2 (Friday).  One side effect of Gemzar is thinning hair.  The other side effect is tongue and mouth sores…serious fun!

Drug 4 is the Avastin.  This is a drug that is supposed to stop the growth of new blood vessels.  I love this line from the side effect warning…

“Although some people may have a life-threatening side effect, most do not.” The life-threatening side effect? Yikes!

Once all is done, they disconnect the port and I head out!  I usually have some extra energy right at the end, so it’s a good time to run errands.  Crash time happens a couple of hours later.  But then, I usually have the insomnia the first night again. When I get Carbo, I have to take steroids for three days post chemo which messes with my sleep big time!

Most of my side effects seem to be nausea and fatigue.  Not very glamorous, but I just deal with it.

Blood doesn’t lie

Each cycle of radiation or chemo is followed by the inevitable blood draw.  It takes about a week for the CA 125 Ovarian Cancer marker to come back.  Other blood markers are available in just a few days.  Every time they take blood, I wait anxiously for the results.  The last CA level blood marker was the harbinger of recurrence.  Even “normal” values can cause fear if they double or triple for the previous draw.  This go round, the hospital is using a new lab, so the numbers can’t be compared to previous values.  There is no joy or heartbreak associated with this number; it’s simply a number.  The plan, unless there is some anomaly is that I’ll start chemo next week.  Happy to be down with radiation, but remembering the trek that was the last chemo journey.  This time will be new drugs, which inevitably means new side effects.  In the meantime…trying to get healthy and recommending these documentaries on #NetflixMortified Nation, Queen of Versailles, Girl Model, Russia’s Toughest Prisons, Fat Sick & Nearly Dead. 

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